Lobbying Relationship

Client

Alexion Pharmaceuticals

More records

Lobbying firm

NVG, LLC

More records

  • FDA - rare and orphan disease issues; Prescription drug coverage and payment policies; Medical innovation issues.
  • FY 2022 LHHS Appropriations report language on Wilson's Disease, Myasthenia Gravis; Neuromyelitis Optica Spectrum Disorder (NMOSD); Low volume DRG payments for rare disease therapies and home infusion.
  • Orphan Drug Tax Credit provisions in the Build Back Better Act (H.R. 5376).

Duration: to

General Issues: Health Issues, Budget/Appropriations, Taxation/Internal Revenue Code, Medicare/Medicaid, Copyright/Patent/Trademark, Trade (Domestic & Foreign)

Spending: about $2,490,000 (But it's complicated. Here's why.)

Agencies lobbied since 2010: U.S. Senate, House of Representatives, U.S. Senate,, House of Representatives,, Treasury - Dept of

Bills mentioned

S.771: Improving Access To Affordable Prescription Drugs Act

Sponsor: Al Franken (D-Minn.)

S.637: Creating Transparency to Have Drug Rebates Unlocked (C-THRU) Act of 2017

Sponsor: Ron Wyden (D-Ore.)

S.934: FDA Reauthorization Act of 2017

Sponsor: Lamar Alexander (R-Tenn.)

H.R.1231: RACE for Children Act

Sponsor: Michael McCaul (R-Texas)

S.456: RACE for Children Act

Sponsor: Michael Bennet (D-Colo.)

S.1390: STRONGER Patents Act of 2017

Sponsor: Christopher A. Coons (D-Del.)

S.974: Creating and Restoring Equal Access to Equivalent Samples Act of 2018

Sponsor: Patrick J. Leahy (D-Vt.)

H.R.34: 21st Century Cures Act

Sponsor: Suzanne Bonamici (D-Ore.)

H.R.1537: Advancing Hope Act of 2015

Sponsor: G. K. Butterfield (D-N.C.)

S.1878: Advancing Hope Act of 2016

Sponsor: Bob Casey (D-Pa.)

H.R.6: 21st Century Cures Act

Sponsor: Fred Upton (R-Mich.)

H.R.9: Innovation Act

Sponsor: Robert W. Goodlatte (R-Va.)

S.866: Patent Quality Improvement Act of 2013

Sponsor: Charles E. Schumer (D-N.Y.)

S.1013: Patent Abuse Reduction Act of 2013

Sponsor: John Cornyn (R-Texas)

H.R.2639: Patent Litigation and Innovation Act of 2013

Sponsor: Hakeem Jeffries (D-N.Y.)

H.R.3309: Innovation Act

Sponsor: Robert W. Goodlatte (R-Va.)

S.1720: Patent Transparency and Improvements Act of 2013

Sponsor: Patrick J. Leahy (D-Vt.)

H.R.3204: Drug Quality and Security Act

Sponsor: Fred Upton (R-Mich.)

S.959: Pharmaceutical Quality, Security, and Accountability Act

Sponsor: Tom Harkin (D-Iowa)

H.R.3765: Temporary Payroll Tax Cut Continuation Act of 2011

Sponsor: Dave Camp (R-Mich.)

H.R.3590: Patient Protection and Affordable Care Act

Sponsor: Charles B. Rangel (D-N.Y.)

H.R.4872: Health Care and Education Reconciliation Act of 2010

Sponsor: John M. Spratt Jr. (D-S.C.)

H.R.1: An Act to provide for reconciliation pursuant to titles II and V of the...

Sponsor: Kevin Brady (R-Texas)

S.340: CREATES Act of 2019

Sponsor: Patrick J. Leahy (D-Vt.)

H.R.965: CREATES Act of 2019

Sponsor: David Cicilline (D-R.I.)

S.64: Preserve Access to Affordable Generics and Biosimilars Act

Sponsor: Amy Klobuchar (D-Minn.)

H.R.2375: Preserve Access to Affordable Generics and Biosimilars Act

Sponsor: Jerrold Nadler (D-N.Y.)

S.1224: Stop STALLING Act

Sponsor: Amy Klobuchar (D-Minn.)

H.R.2374: Stop STALLING Act

Sponsor: Hakeem Jeffries (D-N.Y.)

S.1227: Prescription Pricing for the People Act of 2019

Sponsor: Charles E. Grassley (R-Iowa)

H.R.2376: Prescription Pricing for the People Act of 2019

Sponsor: Doug Collins (R-Ga.)

S.1416: Affordable Prescriptions for Patients Act of 2019

Sponsor: John Cornyn (R-Texas)

H.R.3391: To Offer Refugees College Help (TORCH) Act

Sponsor: Jared Huffman (D-Calif.)

H.R.4398: Affordable Prescriptions for Patients Through Promoting Competition Act...

Sponsor: David Cicilline (D-R.I.)

H.R.1499: Protecting Consumer Access to Generic Drugs Act of 2019

Sponsor: Bobby L. Rush (D-Ill.)

H.R.5376: Inflation Reduction Act of 2022

Sponsor: John Yarmuth (D-Ky.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Andrea LaRue Rules Cmte Counsel, Sen. Dodd Counsel, Sen. Daschle Legis. Asst. and Dist. Dir., Cong. Andrews
Jane Loewenson Health Fellow, Senator George Mitchell Professional Staff Member, Subcommittee on children and families of the Senate and Labor and Human Resources comte., Sen. Chris Dodd Senior Health Policy Advisor, Senator Thomas Daschle
Lisa Foster Senior Policy Advisor, Senator Jack Reed
Patricia Griffin n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

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Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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