Lobbying Relationship

Client

National Down Syndrome Society

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Lobbying firm

National Down Syndrome Society

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  • H.R. 2706/S.1183, The Charlotte Woodward Organ Transplant Discrimination Prevention Act, related to prohibiting discrimination on the basis of mental or physical disability in cases of anatomical gifts and organ transplants H.R. 1263 / S.533, the Transformation to Competitive Integrated Employment Act, related to assisting employers providing employment under special certificates issued under section 14(c) of the Fair Labor Standards Act of 1938 in transforming their business and program models to models that support individuals with disabilities through competitive integrated employment, to phase out the use of such special certificates, and for other purposes. H.R. 619 / S.133, the NAPA Reauthorization Act - related to extending the National Alzheimers Project Act. H.R. 485, the Protecting Health Care for All Patients Act of 2023 - To amend title XI of the Social Security Act to prohibit the use of quality-adjusted life years and similar measures in coverage and payment determinations under Federal health care programs. H.R.5408 / S.2767 - SSI Savings Penalty Elimination Act - would update SSIs asset limits ensure disabled and elderly Americans are able to prepare themselves for a financial emergency without putting the benefits they rely on to live at risk. The SSI Savings Penalty Elimination Act would raise caps to $10,000 for individuals and $20,000 for married couples, and index them to inflation moving forward. H.R.3308 - HEADs UP Act of 2023 - This bill authorizes the Department of Health and Human Services (HHS) to award grants to support health centers that provide services for individuals with developmental disabilities, including dental care. Grant recipients must provide specialized treatment to individuals with developmental disabilities as necessary. The bill also provides statutory authority for HHS to designate individuals with developmental disabilities as health-professional shortage population groups for the purposes of the National Health Service Corps (NHSC). The NHSC provides scholarships and student loan repayment awards to eligible providers who agree to work with designated populations or in areas that face shortages of primary care, dental care, and mental health care providers. H.R.3111 - Words Matter Act of 2023 - This bill removes outdated terminology in specified statutes by replacing references to mentally retarded and mental retardation with intellectual disability. Implementation of the Fair Labor Standards Act of 1938 (P.L. 75-718); Implementation of the Individuals with Disabilities Education Act (P.L. 89-110); Implementation of the National Alzheimers Project Act (P.L. 107-279); and Implementation of the Social Security Amendments of 1965 (Public Law 89-97), as amended.

Duration: to

General Issues: Civil Rights/Civil Liberties, Health Issues, Education, Taxation/Internal Revenue Code, Medical/Disease Research/Clinical Labs, Medicare/Medicaid, Housing, Labor Issues/Antitrust/Workplace, Transportation, Financial Institutions/Investments/Securities, Small Business

Spending: about $1,202,550 (But it's complicated. Here's why.)

Agencies lobbied since 2008: U.S. Senate, House of Representatives, Labor - Dept of (DOL), Education - Dept of, Centers For Medicare and Medicaid Services (CMS), Health & Human Services - Dept of (HHS), White House Office, Internal Revenue Service (IRS), U.S. Senate,, Administration for Children & Families (ACF), Health Resources & Services Administration (HRSA), Natl Institute of Mental Health (NIMH), Natl Institutes of Health (NIH), Health & Human Services - Dept of (HHS), Administration on Aging, Centers For Disease Control & Prevention (CDC), Centers For Medicare and Medicaid Services (CMS), Employment & Training Administration, Employment Standards Administration, Equal Employment Opportunity Commission (EEOC), Housing & Urban Development - Dept of (HUD), Agency for Health Care Policy & Research, Agency for Health Care Policy & Research,

Bills mentioned

H.R.647: ABLE Act of 2014

Sponsor: Ander Crenshaw (R-Fla.)

S.313: ABLE Act of 2013

Sponsor: Bob Casey (D-Pa.)

H.R.447: National Apprenticeship Act of 2021

Sponsor: Robert C. Scott (D-Va.)

H.R.761: MAPSA Act

Sponsor: John Katko (R-N.Y.)

H.R.1219: ABLE Age Adjustment Act

Sponsor: Tony Cárdenas (D-Calif.)

S.331: ABLE Age Adjustment Act

Sponsor: Bob Casey (D-Pa.)

H.R.1235: Charlotte Woodward Organ Transplant Discrimination Prevention Act

Sponsor: Jaime Herrera Beutler (R-Wash.)

H.R.2373: Transformation to Competitive Integrated Employment Act

Sponsor: Robert C. Scott (D-Va.)

S.260: Protecting Immigrant Victims of Domestic Violence Act

Sponsor: Amy Klobuchar (D-Minn.)

H.R.3474: Keeping All Students Safe Act

Sponsor: Donald Beyer (D-Va.)

S.1858: Keeping All Students Safe Act

Sponsor: Christopher S. Murphy (D-Conn.)

H.R.3765: Disability Employment Incentive Act

Sponsor: Josh Harder (D-Calif.)

S.630: Disability Employment Incentive Act

Sponsor: Bob Casey (D-Pa.)

H.R.3836: Protecting our Students in Schools Act of 2021

Sponsor: A. Donald McEachin (D-Va.)

S.2029: Protecting our Students in Schools Act of 2021

Sponsor: Christopher S. Murphy (D-Conn.)

H.R.4131: Better Care Better Jobs Act

Sponsor: Debbie Dingell (D-Mich.)

S.2210: Better Care Better Jobs Act

Sponsor: Bob Casey (D-Pa.)

H.R.4672: ABLE Employment Flexibility Act

Sponsor: Thomas Suozzi (D-N.Y.)

H.R.4756: Exercise and Fitness for All Act

Sponsor: Mark DeSaulnier (D-Calif.)

S.2504: Exercise and Fitness for All Act of 2021

Sponsor: Tammy Duckworth (D-Ill.)

S.3301: Charlotte Woodward Organ Transplant Discrimination Prevention Act

Sponsor: Marco Rubio (R-Fla.)

H.R.5376: Inflation Reduction Act of 2022

Sponsor: John Yarmuth (D-Ky.)

S.CON.RES.14: A concurrent resolution setting forth the congressional budget for the...

Sponsor: Bernard Sanders (ID-Vt.)

H.R.6205: EDUCATORS for America Act

Sponsor: Alma Adams (D-N.C.)

S.3360: EDUCATORS for America Act

Sponsor: Jack Reed (D-R.I.)

H.R.6783: Autism Family Caregivers Act of 2022

Sponsor: Grace Meng (D-N.Y.)

H.R.7309: Workforce Innovation and Opportunity Act of 2022

Sponsor: Robert C. Scott (D-Va.)

S.3427: Neuroscience Center of Excellence Act of 2021

Sponsor: Susan Collins (R-Maine)

H.R.7775: NAPA Reauthorization Act

Sponsor: Paul Tonko (D-N.Y.)

S.4203: NAPA Reauthorization Act

Sponsor: Susan Collins (R-Maine)

S.4102: SSI Savings Penalty Elimination Act

Sponsor: Sherrod Brown (D-Ohio)

H.R.2706: Charlotte Woodward Organ Transplant Discrimination Prevention Act

Sponsor: Kat Cammack (R-Fla.)

S.1183: Charlotte Woodward Organ Transplant Discrimination Prevention Act

Sponsor: Marco Rubio (R-Fla.)

H.R.1263: Transformation to Competitive Integrated Employment Act

Sponsor: Robert C. Scott (D-Va.)

S.533: Transformation to Competitive Integrated Employment Act

Sponsor: Bob Casey (D-Pa.)

H.R.619: NAPA Reauthorization Act

Sponsor: Paul Tonko (D-N.Y.)

S.133: NAPA Reauthorization Act

Sponsor: Susan Collins (R-Maine)

H.R.485: Protecting Health Care for All Patients Act of 2023

Sponsor: Cathy McMorris Rodgers (R-Wash.)

H.R.5408: SSI Savings Penalty Elimination Act

Sponsor: Brian Higgins (D-N.Y.)

S.2767: SSI Savings Penalty Elimination Act

Sponsor: Sherrod Brown (D-Ohio)

H.R.3308: Farm Operations Support Act

Sponsor: Joe Wilson (R-S.C.)

H.R.3111: Words Matter Act of 2023

Sponsor: Mark Pocan (D-Wis.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Madeleine Will Vice President of Public Policy Vice President, Government Affairs Vice President of Public Policy, NDSS VP of Public Policy Vice President, Public Policy
Sara Weir President Vice President of Advocacy and Affiliate Relations VP of Advocacy and Affiliate VP of Advocacy and Affiliate Relations Vice President, Advocacy and Affiliate Relations VP OF ADVOCACY AND AFFILIATE RELATION VP OF ADVOCACY AND AFFILIATE RELATIONS Vice President Advocacy and Affiliate Relations
Ginny Sessions Manager, Grassroots and Development Programs Manager, Grassroots and Development Programming
Virginia Sessions Manager, Grassroots and Development Programs
Ginny Sessions Siller Manager, Grassroots and Development Programming
Saud Shah Director of Advocacy and Policy
Heather Sachs n/a
Sara Wier n/a
Ashley Helsing n/a
Nicole Patton n/a
Kayla McKeon n/a
Adrian Forsythe n/a
Bartholomew Devon n/a
Anna Fedewa n/a
Charlotte Woodward n/a
Nicholas Leto n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

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Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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