• of predictive genetic information. Additionally, such legislation would stop both employers and insurers from requiring applicants to submit to genetic tests, maintain strict use and disclosure requirements of genetic test information, and impose penalties against employers and insurers who violate these provisions. As leaders of the Coalition for Genetic Fairness, Genetic Alliance is working to ensure that no one is discriminated against--in health insurance or employment--based on their genetic information. We believe that education of legislators, passage of reasonable legislation and implementation of balanced regulation will speed the translation of research to treatments and the marketplace. The persuasive voices of consumer groups and advocacy organizations, in concert with other key stakeholders, can facilitate these critical elements. We are working diligently to build support for the Genetic Information Nondiscrimination Act in the community and in Congress.

Duration: November 1, 2007 to July 1, 2012

General Issues: Health Issues, Insurance, Labor Issues/Antitrust/Workplace

Spending: about $0 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2007: House of Representatives, Senate