• Request research and clinical funding for PKD under the competitive Defense Peer Reviewed Medical Research Program under the FY 2009 Defense Appropriations bill (H.R. 2638 as enacted); PKD report language to establish PKD Clinical and Diagnostic Treatment Centers in the NIH/NIDDK section of FY09 LHHS Approps bill (House Labor HHS subcommittee report, no bill intro'd, and S.3230) language to fund the expansion of PKD-specific patient services, education and empowerment initiatives support patient education, disease management and outreach in the HHS section of the FY 2009 Labor/HHS/Education Appropriations bill (House Labor HHS subcommittee report, no bill intro'd)

Duration: April 1, 2008 to December 31, 2008

General Issues: Medical/Disease Research/Clinical Labs

Spending: about $50,000 (But it's complicated. Here's why.)

It can be tricky to figure out how much an organization spent on a particular lobbying engagement. The law only requires lobbyists to report the amount they were paid for federal lobbying each quarter rounded to the nearest $10,000—and if it's less than $3,000 in a given quarter (or less than $13,000 for organizations with in-house lobbyists), they don't have to disclose it at all. Plus, some organizations include spending that doesn’t belong in the report—for instance, money spent lobbying state governments or other legal work.

Agencies lobbied since 2008: House of Representatives, U.S. Senate