Lobbying Relationship

Client

Amylyx

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Lobbying firm

Thorn Run Partners

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  • Advocating for the education and advancement of cures for ALS, as well as working to meet the needs of ALS patients. S.3258 - ALS Better Care Act. H.R.5663 - To amend title XVIII of the Social Security Act to provide coverage of ALS-related services under the Medicare program for individuals diagnosed with amyotrophic lateral sclerosis, and for other purposes.

Duration: to

General Issues: Health Issues

Spending: about $550,000 (But it's complicated. Here's why.)

Agencies lobbied since 2021: U.S. Senate, House of Representatives

Bills mentioned

H.R.2617: Consolidated Appropriations Act, 2023

Sponsor: Gerald E. Connolly (D-Va.)

H.R.9638: Medicare Payment Reform for People with ALS Act of 2022

Sponsor: Jan Schakowsky (D-Ill.)

H.R.2617: Choices for Stranded Passengers Act of 2023

Sponsor: Katie Porter (D-Calif.)

H.R.5663: ALS Better Care Act

Sponsor: Jan Schakowsky (D-Ill.)

S.3258: ALS Better Care Act

Sponsor: Christopher A. Coons (D-Del.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Stuart Chapman Chief of Staff, Representative Carolyn McCarthy; Chief of Staff, Representative Zack Space; Press Secretary, Senator Jay Rockefeller; Press Secretary, Representative Barbara Lee
Alex DelPizzo Legislative Director/Legislative Asst, Rep. Ferguson; Staff Asst, House Transportation and Infrastructure Committee

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

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Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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