Lobbying Relationship

Client

Lowe Syndrome Association

More records

Lobbying firm

Kiley Capitol Solutions, LLC

More records

  • FY25 appropriations request through the House & Senate Appropriations Labor, Health & Human Services Sub Committee. The request sought would provide funding to modernize patient database, patient registry (opt-in only).
  • FY24 appropriations request through the Senate Appropriations Labor, Health & Human Services Sub Committee. The request sought would provide funding to modernize patient database, patient registry (opt-in only) as well as funding for modern IT infrastructure equipment.

Duration: to

General Issues: Budget/Appropriations, Health Issues, Accounting

Spending: about $22,500 (But it's complicated. Here's why.)

Agencies lobbied since 2023: House of Representatives, U.S. Senate

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Jim Kiley n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Q1 Report
Q4 Report
Q3 Report
Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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