Lobbying Relationship

Client

EveryLife Foundation for Rare Diseases

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Lobbying firm

Polsinelli PC

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  • Issues pertaining to accelerating the drug approval process for ultra rare diseases [Orphan Product Extensions Now Accelerating Cures & Treatments - OPEN ACT (H.R. 1223/S.1509) -- all provisions

Duration: to

General Issues: Health Issues

Spending: about $595,000 (But it's complicated. Here's why.)

Agencies lobbied since 2011: U.S. Senate, House of Representatives, Executive Office of the President (EOP), House of Representatives,

Bills mentioned

H.R.1223: OPEN Act

Sponsor: Gus Bilirakis (R-Fla.)

S.1509: Orphan Products Extension Now Accelerating Cures and Treatments Act of 2017

Sponsor: Orrin G. Hatch (R-Utah)

H.R.971: Orphan Product Extensions Now Accelerating Cures and Treatments Act of 2015

Sponsor: Gus Bilirakis (R-Fla.)

S.1421: Orphan Product Extensions Now Accelerating Cures and Treatments Act of 2015

Sponsor: Orrin G. Hatch (R-Utah)

H.R.6: 21st Century Cures Act

Sponsor: Fred Upton (R-Mich.)

H.R.5750: Orphan Product Extensions Now Accelerating Cures and Treatments Act of 2014

Sponsor: Gus Bilirakis (R-Fla.)

H.R.4132: FAST Act

Sponsor: Cliff Stearns (R-Fla.)

S.3187: Food and Drug Administration Safety and Innovation Act

Sponsor: Tom Harkin (D-Iowa)

H.R.5661: To suspend temporarily the rate of duty on 1-Hydroxy cyclohexyl phenyl...

Sponsor: Jo Bonner (R-Ala.)

Show All Mentioned Bills

Lobbyists

Lobbyists named here were listed on a filing related to this lobbying engagement. They may not be working on it now. Occasionally, a single lobbyist whose name is spelled two different ways on filings may be represented twice here.

Lobbyist Covered positions?
Harry Sporidis LA, Reps. E.C. Shaw, M. Bilirakis; Sr. LA, Rep. J. Greenwood
Rob Daley LA, Sen. John Barrasso
Tim Perrin n/a

Disclosures Filed

Once a lobbying engagement begins, the lobbyist or firm is required to file updates four times a year. Those updates sometimes change which lobbyists are involved or add new issues being discussed. When lobbyists stop working for a client, the firm is also supposed to file a report disclosing the end of the relationship.

Termination
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Registration

Source: Clerk of the U.S. House of Representatives and Secretary of the Senate

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