- Lobbying
- everylife AND foundation AND for AND rare AND diseases
Lobbying Arrangements Results for 'Everylife Foundation For Rare Diseases'
Former Covered Federal Workers:
Other Lobbyists:
Issue | Client | Firm | Lobbyists | Start Date | Latest Filing Date |
---|---|---|---|---|---|
Details Issues pertaining to accelerating the drug approval process for ultra rare diseases [Orphan Product Extensions Now Accelerating Cures & Treatments - OPEN ACT (H.R. 1223/S.1509) -- all provisions |
EveryLife Foundation for Rare Diseases
|
Polsinelli PC | |||
Details Newborn Screening Save Lives Reauthorization Act; Telehealth; Appropriations; S. 526, H.R. 1092 - Better Empowerment Now to Enhance Framework and Improve Treatments Act of 2023 (BENEFIT Act); Acces... |
EVERYLIFE FOUNDATION FOR RARE DISEASES
|
in-house lobbying | |||
Details Rare Disease Center of Excellence |
EveryLife Foundation for Rare Diseases
Advocacy organization for patients with rare diseases |
iPolicy Solutions | |||
Details FDA policies pertaining to development of rare disease therapies; rare disease education and awareness including activities via the Congressional Rare Disease Caucus; newborn screening program poli... |
EveryLife Foundation for Rare Diseases
|
Faegre Drinker Biddle & Reath LLP |